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Rett Syndrome

Some user interaction via the Eyegaze system is possible, but results are still being studied and evaluated.


Rett Syndrome

Rett Syndrome is a rare genetic postnatal neurological disorder of the brain that impacts body function and cognitive linguistic skills.

Demonstrable use by some Rett Syndrome users


Using Eyegaze® with Rett Syndrome

While it used to be assumed that individuals with Rett Syndrome were not capable of intentional communication, current clinical practice and research are highlighting varying methods to access communication in these individuals.
The eyes become a portal for basic communication.
Speech-language pathologists who have clinical experience with Rett Syndrome recommend determining the individual’s ability to respond to simple, high interest choices via motor responses, then transitioning to mid-tech and high-tech augmentative and alternative communication (AAC) methods, including eyegaze devices as functionally appropriate.

A current, detailed discussion can be found by Dr. Theresa Bartolotta on the PrAACtical AAC Blog.

A small percentage of evaluations done using the Eyegaze Edge with individuals with Rett Syndrome have resulted in accurate calibration and use. On the other hand, some were able to calibrate using the Eyegaze Edge but were not able to use the device in meaningful ways.

Since behaviors and measurable indicators of cognitive linguistic abilities can vary greatly within this population, it is best to proceed with professionals who are well seasoned in working with Rett Syndrome who understand factors of success for the individual client.


What Users Say About Eyegaze

My arms and hands were deteriorating quite rapidly meaning I couldn’t work anymore. The Eyegaze saved my software engineering job. I can control a Mac and do everything with my eye that I used to do with my hands. I can respond to email, I can surf the web, and I can hold conversations…

Software Engineer, MIT

I can read books using Kindle, listen to music, email, surf the web, play games, and more. I am once again my old self. Without it I would be a prisoner in my body, with it I am the same smart guy I used to be, with the exception of being paralyzed.


Thank you and everyone you work with. My son Jack is laying in his hospital bed right now using his Eyegaze to chat with his friends on Facebook, check his email, and he just posted on his web page… the nurses and doctors are amazed watching him do all of this with a breathing tube in his throat and about 20 other assorted lines attached to various parts of his body.


My student does research on the Internet for the library, with the aid of her Eyegaze Communication System, and she loves it.
Mary Whitley

Service Coordinator, TCRC Alph Resource Connections Library

Additional Resources

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