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Muscular Dystrophy, Spinal Muscular Atrophy, and Werdnig-Hoffmann

Users find the Eyegaze Edge a fast and easy method of computer access, even if they retain verbal and head control to use other methods.


Muscular Dystrophy and Spinal Muscular Atrophy

Muscular Dystrophy is a hereditary condition characterized by progressive weakening of muscle systems. Spinal muscular atrophy (SMA) is a group of disorders characterized by the degeneration of lower motor neurons, causing atrophy of various muscle groups in the body, including muscles needed for communication in some cases.

SMA is categorized by type: Type I, ranging from severe physical impairments, to type IV with mild weakness and impairments. Individuals with SMA are alert, interactive and eager to communicate and access the world of technology!

Eyegaze Edge® Features

Works at Many Different Angles

Easily Finds User's Eye at Any Head Angle or Lean

Can Be Used By Young Children


Using Eyegaze® with Muscular Dystrophy or Spinal Muscular Atrophy

Children and adults with MD, SMA, and Werdnig-Hoffmann are typically robust Eyegaze communicators who benefit from the ease of positioning of the Eyegaze Edge in regard to their own unique positioning needs.

Maylan Chavez, our Eyegaze Edge® Spokeswoman
with SMA has a message for you!
The Eyegaze Edge finds the user’s eye easily, even with significant head angle or lean.

Other eye tracking devices on the market require that the user have no significant left or right lean in respect to the eye tracking camera. Thus, the user has to sit up straight or the monitor has to be tilted and mounted to meet the individual’s position.

We have learned that children and adults with SMA may often need to adjust position or remain laying on their side for extended periods of time. The Eyegaze Edge easily mounts and finds the eye of the Eyegaze user with any significant head angle or lean, allowing them to remain comfortable and functionally communicate.

The Eyegaze Edge Grid 3 software allows children to access language platforms that meet their developmental communication stages and is also fully customizable for their learning and entertainment needs. We have seen success with children young as 15 months old using the Eyegaze Edge with Grid 3 software. Our adult Eyegaze Edge users with SMA access the internet, social media, online shopping, and work programs to connect to the world around them.

Meet Maylan Chavez, our Spokeswoman & Disabilities Advocate: Maylan Communicates to the World and On Stilettos and Stigmas: Living With Spinal Muscular Atrophy.


What Users Say About Eyegaze

My arms and hands were deteriorating quite rapidly meaning I couldn’t work anymore. The Eyegaze saved my software engineering job. I can control a Mac and do everything with my eye that I used to do with my hands. I can respond to email, I can surf the web, and I can hold conversations…

Software Engineer, MIT

I can read books using Kindle, listen to music, email, surf the web, play games, and more. I am once again my old self. Without it I would be a prisoner in my body, with it I am the same smart guy I used to be, with the exception of being paralyzed.


Thank you and everyone you work with. My son Jack is laying in his hospital bed right now using his Eyegaze to chat with his friends on Facebook, check his email, and he just posted on his web page… the nurses and doctors are amazed watching him do all of this with a breathing tube in his throat and about 20 other assorted lines attached to various parts of his body.


My student does research on the Internet for the library, with the aid of her Eyegaze Communication System, and she loves it.
Mary Whitley

Service Coordinator, TCRC Alph Resource Connections Library

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